Holistic care of a terminally-ill neonate in Australia In the Australian tertiary health care system, ‘best practice’ in the care of a terminally-ill neonate and the neonate’s family centers on the pr
Holistic care of a terminally-ill neonate in Australia In the Australian tertiary health care system, ‘best practice’ in the care of a terminally-ill neonate and the neonate’s family centers on the pr
& (1996), (2005), (2007), (2009), (2012), (2013), (2015: (2019) (Ahern, (Badenhorst (Boyle (Branchett (Breeze (Brosig (Capitulo, (De (Gardner (Griffin, (Kain, (PSANZ, (Porta (Reid (Roose (Weidner (Williams (Williamson (World / 04 1, 108-114. 1273-1282. 13, 139-115. 172, 18, 1996). 2, 20 2005). 2005; 2006; 2007). 2007; 2008). 2008; 2009). 2009; 2010). 2010, 2011), 2011). 2013). 2013); 2015, 2019), 2019). 2019; 21, 249-259. 27, 28, 30, 389-396. 40-44. 43, 510-516. 56-58. 6, 75-83. 8, 88-92. 92, A A., ACG., AM., Additionally, Administering Advances Ahern, American Archives As At Australia Australia, Australia. Australian BS., Badenhorst, Bergstraesser, Best-practice Blanford, Boyle, Branchett, Breeze, Brosig, CC., CL., Capitulo, Care Care, Carter Carter, Child Childhood, Clinical College De Developing Dickey, Disease E., EM., European Evidence FM., Family-centred Fetal Follow-up Following For Frader, Gardner General Grief Guidelines Gynaecology, HH., Health Holistic However, Hughes, In Information Issues It J., JC., JM., Jones, Journal K., KL., Kumar, Kupst, Larcher, Lees, Leuthner, Lisle-Porter Lisle-Porter, M., MJ., Maternal Medicine, Memories Missfelder-Lobos, Most Murdoch, Najman, Neonatal Neonates Network, Normal Nursery: Nurses Nurses, Nursing, Obstetrics October Once Organisation Organisation, P., PM., PSANZ, Palliative Parents Pediatrics, Perinatology, Pierucci, Podruchny, Practitioners Prestressed, Prevalence RL., References Referral Reid Research Royal SIDS: SR., Science Seminars So Social Stretton, The Thearle, There They This Though Thus, Vance, W., Weidner What When Where Whilst Wiliamson Williams World [which] a ability able abnormality’, about academic accepted accommodation, according achieve, achieved achieving activity addition affect affected agitation, al., all allow also among an analgesia and appropriate appropriate. are area around as aspects aspirations, assist associated assured at attached attention autopsy babies baby baby, baby’s baptism, bathe bathing be becomes becoming been begin begins being bereavement’, bereaving best best-practice better blankets, body, born both bracelets breast breastfeeding but by calls can cannot cards, care care. care: cared carefully caregiving care’ care’, care’. caring case case, casts cause ceased centers centres ceremonies challenging change changing child children child’s choice choice; clinical close closure clothing clothing, collected collecting comfort comfortable comfortable, commitments, communicate community company complete complex comprehend concerned condition conditions conducted confusion consensus consider consider; consideration consideration. considerations. considered considered; constitute context context. counsellors creation cues death death, death. deceased decision decision-making decisions decline declines, decompensating decorations, deficits degree delivering delivery demonstrated denial depression diagnosed discharge’ discomfort discussed discusses displaying distress distressing do documentation documented documents, does doing dose drive duration during dying dynamic, early emotional emotions emotive employment enabling encouraged end end-of-life engage engaged engagement engaging enhanced ensure environment essential essential, et etc. euthanasia, even evidence example, expectations, experience experienced explored exposed expressed extended extent facilitating fact factor factors familial families families. family family-centred family. family; family”. fear fearing feeding feel feelings feet, fetal finances, find flexible, focus follow-up, followed following for from fundamental fundamentally funeral gasping, gastrointestinal general gestation. gifts, given giving grandparents greater grief grief, groups, guidelines guilt hair, hands has hats have healing health healthy higher highlight highlights highly hold hold, holding, holistic home hospital hospitals how however, https://acnn.sslsvc.com/acnn-resources/clinical-guidelines/G3-Palliative-care-in-the-neonatal-nursery.pdf hydration hypoxic identification if ill ill; illegal illness, impact impending important important. important; in include included includes including increase indecisiveness, indeed, indicates inessential infancy, infant, information informed intensive interactions intercostal interdependent interventions intravenous invasive involved involves involving is it itself key know lack lactation, lead legally lethal lie life life’, likely lines, literature live locks longer loss loss, loss’, made main make manner many maternity maximal maximise may meaningful meaningfully medical members memories memories; mental met, milk mind model models monitors more mortality most mother mothers mothers’, must n.p.) naming narcotic nasogastric need neonatal neonate neonate, neonate: neonate; neonates neonates, neonate’s no no. normal normalcy not note nurseries nursery nurses occur occur. of often on one only opinions opportunities opportunity option options or order organise other outcome outcomes over overwhelming own palliate palliated palliation palliation. palliative pallour paper parent parental parenthood parenting parents parents, parents. parents’ part particular particular, particularly partners’ patients patients, patterns peaceful peer performed, perinatal period periods permits, personal perspective’, pharmaceutical phase. photographs physical physiologically place places plan planned planning policies policies’, positive possibility possible postnatal pp. practical practice practice’ practitioners, predicted preference preferences prenatally prepare prevent printed prints prior private, process process, processes professionals’, profound progressively provide provided provides providing provision proximity psychological quality range rapidly rates reaction reading ready ready, realise receive recession, recommend recommendation recommended recommends recovery reduces, referred refers registration regret regrets reinforcing related relationship relatives relieve reluctant remain remembered. removing repetition require required required, resist respiratory responsibility restricted results return risk rituals role routine safely sedate send services shame, shared shock short should siblings significant significantly signs situation situation, situations so social some spend spending spirit, stage, state, stillbirth, study such suffering suggest suggests support supported supporting supportive suppression sustaining synthesise system system, system. system; take takes taking tangible team. telephone temperature term terminal terminally terminally-ill terms tertiary than that the their them there therefore, these they this those through thus time timely times timing to total towards toys toys, transparent, transport treated treatment treatment. treatment’, typically uncertain. uncommon until uptake useful validate valuable ventilation, videos videos, view viewed visiting vol. want was weeks when where wherever whether which whilst who wider will wish wish, wishes with withdrawal withdrawn. withheld withholding women worker. – ‘Evidence ‘Evidence-based ‘Infant ‘Neonatal ‘Palliative ‘Pediatric ‘Psychological ‘The ‘What ‘best ‘early ‘holistic ‘open ‘palliative ‘welcome “active
Holistic care of a terminally-ill neonate in Australia
In the Australian tertiary health care system, ‘best practice’ in the care of a terminally-ill neonate and the neonate’s family centers on the provision of ‘holistic care’. Neonates and their families are considered an interdependent system; therefore, holistic care involves the complete physical and psychological care of both the neonate and the family. However, quality holistic care can be challenging for nurses to achieve, particularly in a complex palliative model of care. This paper discusses the best practice holistic care of a terminally ill neonate and the neonate’s family in the context of the Australian tertiary health care system.
The term ‘palliative care’ refers to the withholding and / or withdrawal of life sustaining